Anticipated Impacts
Until this point, individuals have not had the means to fully control their own information. The past decade in particular has witnessed the expansion of large internet platforms, leading to the concentration of personal information in their possession, with the consequent negative impacts of extensive data breaches and monopolies that add value. The MyData and self-sovereign identity movements, initiated as a resolution to this issue, will aid in restoring this control to the individuals who provide the data.
This is particularly applicable in the healthcare sector. It is critical that individuals have control over their data, not solely for personal protection, but also for the progression of the industry and the tangible benefits to individuals. It is equally important that the intentions of the parties associated with the data providers are met in order for them to effectively collaborate. Hippocrat will actualize this and summarizes the anticipated impacts highlighted in the white paper.
Data management and integration
Institution centered
Subject centered
Acquiring and managing Patients' consents
Difficult
Easy
Incentivizing
Difficult
Easy
Data forgery/
falsification
Possible
Impossible
Medical information export format
Non-electronic
(Paper, CD,.. etc.)
Electronic
(VC)
Duplicated data
Frequent
Very little
Here are some examples of what Hippocrat can do for each stakeholder:
Patient/Information subject
Medical information authentication
By scanning a registration and reception QR code at the hospital using a data wallet app, patients can securely and simply authenticate their stored legal identity information and receive a patient registration card, which is kept in the data wallet. This card records details such as diagnosis, test outcomes, and prescribed medication, which can be used to provide relevant information at future hospital receptions and for insurance claims. The vaccine pass stored in the app can also be displayed when verifying vaccination status at airports and some public facilities. In situations where medical information submission and authentication are required, only the necessary medical information can be comfortably shared without exposing unnecessary personal data.
Data monetization
Pharmaceutical companies and healthcare providers are eager to pay for data collection to develop value-added drugs and services. Clinical data from hospitals, as well as patient data from services accessed through personal devices, such as social media, shopping, fitness, and mobility, are increasingly used for healthcare purposes. Consequently, the frequency and size of compensation that individuals receive for allowing various organizations and companies to utilize their data will likely increase. Even if they have previously shared their data, they can do so again, enabling continuous monetization. Patients can authorize data transactions via a data wallet app, and gather and manage the compensation they receive in return in a data wallet.
Personalized health care
Patients are ready to pay for healthcare services that can enhance their health and quality of life. By allowing the provision of services that utilize the healthcare data stored in their data wallet, patients can benefit from personalized healthcare.
Pharmaceutical companies and healthcare providers
Securing informed consent-based data
Data with informed consent from patients, robust de-identification minimizes data compromise and enables new discoveries when merged with other datasets. It also allows for more innovative and challenging endeavors by enabling a broader range of uses and commercialization of de-identified data than those allowed by law. Moreover, as consent is shared directly with patients, you can reduce the money spent on intermediary companies or offer more appealing rewards to patients to increase the likelihood of obtaining their data.
Screening of clinical trial participants
Using the data already in a patient's data wallet makes the process of screening patients for clinical trials much more efficient. For instance, when a patient interested in a clinical trial scans a QR code attached to a clinical trial recruitment announcement, they can instantly determine their eligibility based on the data stored in their data wallet and communicate their intent to participate. Trial inclusion and exclusion criteria often remain private, but with zero-knowledge proofs, these criteria and the patient's personal information stay private, and only eligibility can be verified.
Development of personalized healthcare service
With a data wallet that houses various healthcare data, including patient-centric and integrated clinical data, healthcare service development organizations can obtain data for personalized service development on a global scale. Even in the development and commercialization stages, personalized services can be provided instantly by simply connecting the wallet without the need for complex membership registration. This increases user conversion rates and minimizes compliance issues with standardized legal notices for each country, enabling global business operations.
Hospitals and Other Healthcare Organizations
Streamliging patient information issuance
Effectively respond to legislation in the U.S. and other countries that require healthcare organizations to electronically release data held at their facilities. For example, using the Hippocrat Wallet SDK with Raredata will allow you to issue collected data electronically with just a few clicks. This enables compliance with no additional costs and enhances patient satisfaction with a system that respects patient data sovereignty.
Data monetization
When issuing data to a patient's data wallet, the healthcare organization's digital signature is recorded, allowing tracking of the circulation of the issued data even after it has left the organization. If the patient shares the data with a third party for a fee, a portion is automatically distributed to the healthcare organization. This allows the recouping of costs of specialized equipment and staff invested in issuing and managing data and generates additional revenue by facilitating data usage.
Facilitating clinical research
Clinical studies conducted by medical institutions without a sponsor, such as a pharmaceutical company, are difficult to carry out due to budget constraints. It is also expensive and time-consuming to collect patient consent and data for clinical studies. If a patient's data wallet contains data from other clinical studies, it can be used with the patient's consent, saving the patient and researchers time, effort, and money on duplicate data collection. More studies can be conducted without a sponsor.
Public Healthcare Organizations
Building and facilitating public data
Public interest research led by public health organizations, such as the All of US project, can also be significantly streamlined in time and cost by collecting data directly from the data providers, allowing more efficient use of limited public funds. This data can then be transformed into a public good dataset, which in turn helps to improve public healthcare.
Securing public healthcare funding
When data is traded for public interest purposes, the data that is not personally identifiable is used to fund public healthcare organizations in the data provider's country of origin. This balances the rights of data providers with the openness of healthcare data and ensures that Hippocrat maintains a positive working relationship with national institutions.
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